People with chronic locked-in syndrome can experience a good quality of life, with adequate social care, support, technology and funding.
The right support and care can dramatically improve a patient’s life and help them lead a normal life in their home and community.
Technology and appropriate care to support complex needs are integral for quality of life. People living with locked in syndrome will usually have a variety of devices and equipment that allow them to communicate effectively with family and support staff. The access to complex equipment makes an immense difference to the way in which people can live with locked in syndrome